Paul Pietrowski Foundation Web Site
Duchenne Muscular Dystrophy
 

Anyone can say that they want to make a difference in life.
Here is your opportunity to make that difference.



 

 
 

This is Paul today he is 21 years old 
 
 
 
Paul Pietrowski, a 21-year-old past Des Plaines resident, has Duchenne muscular dystrophy, a disease that is rapidly destroying his muscle tissue. His family is desperately struggling to save their only son.  The only hope for Paul is a myoblast transfer treatment.







September 2011 UPDATE

September 25th 2011, Sport Clips in Carpentersville and Hoffman Estates, owned by Dennis Malec at the time, organized a benefit for Paul and the Save Paul Fundraiser. When Paul’s Sister Diana, assistant manager of Carpentersville, bought this to Dennis’s attention, he thought having a benefit would be a great thing to do. The promotion involved getting free haircuts for any donation made to help Paul. More than 100 people in the community contributed to the event between both stores. The benefit was advertised in the newspapers, facebook, and flyers were passed out in the salons and local stores, gas stations, etc. The girls volunteered their time to come and organize the benefit and cut hair all day long to help and get as many people in as possible. It took the girls at SportClips about 3-4 months to organize and plan this event to make sure it turns out great. Paul was able to attend the benefit at both locations. He was able to take pictures, talk to people, and have a great time. Cathie Sugel, manager of Hoffman Estates at the time, organized a live radio broadcast from the Hoffman Location. A Special Thank-you to Steven Tomeszewski radio host for “The Soldiers Family Radio and TV Show” (www.sftvr.com) for coming out and supporting Paul during this event. We greatly appreciate it. Paul was live on the radio talking and answering questions. Both Carpentersville and Hoffman Estates were live on air talking back and forth about this event. The benefit lasted all day long and was very successful. Sport Clips raised close to $2,500 to the Save Paul Fundraiser. Thank you to all that contributed, helped and supported Paul during this event. Also, a special thank you to Dennis Malec for organizing the events in both locations. Paul is getting closer to going to Ukraine hopefully soon. Paul turned 21 years old March 1st, 2012. He is doing well, but could be better. It has been close to a year since Paul went to Ukraine. It is time for him to go again. With the help and support from family, friends, and community, we can all make a difference and help Save Paul.


February 2011 UPDATE

Paul Pietrowski, a young man who has Duchene Muscular Dystrophy, is doing better. Paul has been through many struggles in his life. From finding the right doctors to having everything he needs. Paul grew up in Des Plaines and moved to Carpentersville, Illinois about eight years ago. The last few years Paul and his family traveled to Ukraine to the EmCell Clinic for his treatments. Ever since Paul started going he would get a little stronger, happier, and more confident. After Paul would receive these treatments, you would see a huge difference. The family and Paul recently traveled to Ukraine the last week of February, 2011. Everything went good. After his treatment, Paul feels great and is able to do a little more for himself. Paul’s mom and dad help him a lot. He needs help 24/7. Paul sees a physical therapist once a week and does his exercises daily. Paul saw his cardiologist at Yacktman Pavilion Lutheran General Hospital and the doctor said if he didn’t know Paul had MD, he would never guessed something was wrong. His heart is in great condition and very healthy. If it wasn’t for these treatments, I don’t know what would happen. I’m just glad Paul is healthy and is doing better. Paul has a wonderful family who helps him and supports him very much. Thanks to Diane and Lenny Thorne (Why Not Aluminum) for paying for the treatment. With the help of friends, family, and neighbors, Paul is doing better. Hopefully with your help we can send Paul for more treatments.


April 2009 URGENT UPDATE

April 1, 6-8, & 13-15 Jewel is donating a portion of the money from your purchases to Paul IF you provide them with the Shop and Share Group Number 02310587. Please take advantage of this opportunity to help Paul with no cost to you!
 
Due to his health, Paul needs to go back to the Ukraine immediately for another stem cell treatment. The cost of the trip will be approximately $5,500.00. Sadly, the Paul Pietrowski Foundation has been completely depleted of funds. Please help Paul get the treatment he needs by calling or sending in your donation as soon as possible. 
 

2002-2006 Paul’s Journey

Before Paul’s first treatment in 2002, he was strictly confined to his wheelchair. He couldn’t even lift his arms. He was underweight and very weak. Unlike his outgoing personality now, he was very shy and quiet. After his first treatment in 2002, he started gaining a little bit of weight and he started to talk a little more. 

Each year since then he has gone to the Ukraine at least once a year for more treatments.  After each treatment he gains more strength and ability to do things for himself. He has gained more weight, he’s getting taller, and he can keep his head up by himself. He can now lift his arms all the way up in order to do exercises. This is also due to the fact that Paul and his mom have been going to the pool since 2005 so he could get physical therapy in the water. This ongoing treatment is quite expensive, but it is necessary to keep Paul strong and healthy. Paul also has regular visits at the doctors at Yacktman Pavilion Lutheran General Hospital. Every six months Paul sees a cardiologist and neurologist, and every 12 months he has a visit with an orthopedic doctor. Once a week he has physical therapy at home. Thanks to all the people and organizations, Paul has the following installed at home: “Stair Lift,” “Ceiling Lifts” in every room, and an “Adjustable Hospital bed” in his room.

In the last few years, Paul has come out of his shell as he has gained strength and confidence. He enjoys the outdoors and isn’t afraid to make friends at school. He is very outspoken and outgoing. He is attending classes with his peers and he receives good grades. When he does his homework he can now write with a pen or pencil and he can type on the computer very quickly. Diana, his older sister, says “I’ve never seen Paul so happy!”

Please continue to support Paul in his battle to live. Your support equals more time that Paul can spend with his sisters and mother and father. Not only does the treatment add time to Paul’s life, it radically improves it. Things like eating by himself, holding a book up to read it, and reaching out for a hug are things that we might take for granted, but Paul depends on you and I for the luxury of enjoying them. 

June 15, 2007 – Paul Undergoes Heart Surgery
Paul’s heart rate increased dramatically and his doctors could not figure out why. His doctors and his parents decided that the best solution would be a catheter ablation heart surgery. The surgery lasted a full five hours.
Catheter ablation involves delivering highly focused heat (or radio frequency energy) to specific areas of the heart. Radio frequency energy is very rapidly alternating electrical current that is produced at the tip of the catheter that is placed inside the heart. Although very little electricity is given off by the catheter, the instrument does generate a large amount of heat. This heat is absorbed by the heart tissue, causing a small localized burn and destroying the tissue in contact with the catheter tip; in this way, small regions of heart tissue are burned in a controlled manner. This controlled destruction of small sections of heart muscle actually kills the nerve cells causing the irregular heartbeat, stopping the nerve signals that are passing through this section of the heart. This usually causes the irregular heartbeat to be reset into a normal heartbeat.
Paul was in the hospital for one and a half days and was released for homecare. His parents hope that this surgery will regulate his heartbeat. Thank you for your ongoing support. Without it, Paul would not be able to receive these treatments.

2007 Update Return to top of Page

Paul is now 16 years old. At this time Paul is getting bigger and taller and he needs more stem cells. The next visit at “EMCELL” clinic is scheduled for next year, but there are currently no funds available to him. Paul also has regular visits at the doctors at Yacktman Pavilion Lutheran General Hospital. Every six months Paul sees a cardiologist and neurologist, and every 12 months he has a visit with an orthopedic doctor. Once a week he has physical therapy at home. Thanks to all the people and organizations, Paul has the following installed at home: “Stair Lift,” “Ceiling Lifts” in every room, and an “Adjustable Hospital bed” in his room. 
In February 2007, Paul had another stem cell treatment in Ukraine. He was supposed to go at the end of 2006, but the funds were not available. Since his most recent trip to the Ukraine, Paul is able to talk more and he has more energy. He is able to lift his arms up and do exercises with them. In order for Paul to continue to improve, he must return to the Ukraine for more treatment.

Paul goes to H.D. Jacobs High School in Algonquin, and will be entering his junior year in the fall. He has regular classes and understands the material he is taught at school. He receives good grades, learns very well, he is able to read, write and do all his work like a regular student. When Paul is at school he has friends, talks to people, and asks for help when he needs it. Because of his stem cell treatments, he can lift his arms to eat his food and drink by himself at lunch time. He is a very smart boy and has dreams and goals like everyone else. 

He loves to read books and go to the movies with his two sisters, ages 19 and 13. His sister Diana said that he loves to go shopping with his parents (just like most teenagers). When asked to describe her little brother, Diana said that Paul is very funny and sensitive. She also said that he never gives up, even when other kids put him down because of his condition. 

Please continue to support Paul in his battle to live. Your support equals more time that Paul can spend with his sisters and mother and father. Not only does the treatment add time to Paul’s life, it radically improves it. Things like eating by himself, holding a book up to read it, and reaching out for a hug are things that we might take for granted, but Paul depends on you and I for the luxury of enjoying them. 


 

Click Here to See Upcoming Events







Be sure to check back often for fundraising events!

Would you like to sponsor or hold an event for Paul? Contact us today!
 

You can check out the Doctor's website at www.emcell.com.
 

More Good News. Paul is back home. Read his Story!
 
 


Read about Fund Raising Success Stories
 

Media News
 

Read about Myoblast Transfer Treatment Success Stories
 

For donations or information please call 847-297-0101

Paul Pietrowski Foundation


C/o US Bank
   
Why Not Aluminum, Inc. 
701 Lee Street
&
Sponsor
Des Plaines, IL 60016
Des Plaines, IL 60018
US Bank Account # 199372261354
 
     
 Paul Pietrowski Administration Address:
1000 Executive Way, Ste 202 
Des Plaines, IL 60018
Donations can be sent either directly to the bank or to the administration office.  Please make your tax-deductible donation to the Paul Pietrowski Foundation. If you need a receipt, it is better to mail your check to the Administration office. Donations in the amount of $500 or more will receive a receipt for tax purposes. 100% of donated money goes to the Foundation!
501(C)3 Foundation EIN 36-2181978.
 

Paul thanks you for your consideration.

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We would also Like to Thank The Following People for their Help
Thank You
(Listed Alphabetically)

Joe Circolone of Aetna Bearing Co. and Aetna Bearing Co.
Father Cysterian Church in Willow Springs
Karen Dane
Jeff Franzen
Karen Henrikson
Emily Johnston
Wendy Johnston
Roman Karp
Amy Maatta
Kathy Maatta
Jim Mader-selling dinner/dance tickets
Marty and Leslie Malone-selling dinner/dance tickets
MaryEllen McKenna
Ryan McKenna
Dennis Mlynski (Maine West Athletic Boosters)
Holly Napravnik
John Noonan (Rosemont Cavaliers)
North School, Des Plaines
Jarek Nowik
Jim and Elizabeth O'Malley-selling dinner/dance tickets
Dariusz Pietrowski
Diana Pietrowski
Edyta Pietrowski
Marzenna Pietrowski
Paul Pietrowski
Mike & Rhonda Ramsey-selling dinner/dance tickets
Oscar Rodriguez
Special Interest Answering Service
Diane Thorne
Lenny Thorne
Melissa Thorne Cruz
Robert Thorne
 
 
 

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